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We are down at the medical short stay unit today, and I believe Beth is going to have another bone marrow biopsy today, and a Chimerism test. But the nurse is not sure. (It would be the second time they didn’t know what was going on here.)
Last week Beth had some pretty bad rashes. Some of these seem to be healing. The photos here show some of this. She is still plenty itchy, but seems to be getting better.
We are down at the medical short stay unit today, and I believe Beth is going to have another bone marrow biopsy today, and a Chimerism test. But the nurse is not sure. (It would be the second time they didn’t know what was going on here.)
Last week Beth had some pretty bad rashes. Some of these seem to be healing. The photos here show some of this. She is still plenty itchy, but seems to be getting better.
We are headed down to the short stay unit again today. My understanding is that Beth is going to have to get another transfusion. I’ve been going in to work each day, and so I don’t get a chance to talk directly with the folks in the hospital, and so I have less information than I’d like. Last I saw, her hemoglobin level was rising slightly, but it’s also been a hallmark of her behavior that, if she’d get a transfusion, she’d feel good, she’d try to do a lot of stuff around the house, and then she’d feel tired again. Maybe that’s what’s happening.
We do have an appointment with Dr Rossetti on Monday, January 9, and we should find out a lot.
Beth is still suffering from itchy, painful blisters on her hands and feet, and she’s itchy in other places as well. She does seem to be having less trouble eating (it’s easy to see that she’s lost some weight during this process).
Beth had a couple of tests today – an echocardiogram to check to see if her infection settled in her heart (or rather, to verify that it didn’t), and also an MRI, to check her lower spine and hip bones for that same trace of infection. She also needed two units of blood, some platelets, potassium, and magnesium. This is the sort of thing they’ll do in the Short Stay unit, but they haven’t yet (to my knowledge) replaced her catheter.
After work today (just a short day), I stopped by the hospital, but she was sleeping. I came home and did some shopping, now I’m headed back to the hospital to see how she’s doing and spend the night with her.